It's 5 AM and I can't sleep.
My father's been moved to a nursing home. His condition has deteriorated to the point where the assisted living facility could no longer cope. My sister says the new place is nice, the staff is great, the food is good and so on. (It ought to be, it's twice as expensive.)
Now my sister is saying that she feels as if my Dad shouldn't be in hospice care. He's never been happier, she says. (What??) She's thinking now that maybe it would be better for him to have a double amputation of his legs rather than let his circulatory problems run their course (which ultimately is blood poisoning from gangrene, not to put too fine a point on it).
"Old people adjust just fine to amputations," she assures me. "He's already confined to a wheelchair anyway."
My mind is reeling. This is a once six-foot-tall man who now weighs 125 pounds. He has emphysema. And probably an undiagnosed cancer (she hasn't wanted to do the tests to find out for sure). He is senile and getting worse. He can no longer really even feed himself.
And she wants to cut off his legs?
Why????
So he can live half a year longer, even more incapacited than he is currently? So that she can feel less guilty about him "rotting inside?" So that he can spend weeks recovering, either in pain or doped to the gills? Or so he can die on the operating table instead?
In what universe is amputation not a physically and psychologically traumatic experience? (And where does the intervention stop? When his hands too become totally numb and suffer circulatory collapse will she favor removing them as well?)
I cannot conceive of it ever being my father's choice, were he in his right mind. Of course if he were in his right mind, we could ask him and get a meaningful answer. But we can't. My sister is my father's health proxy. The decision is up to her. But I am deeply, deeply distressed by this prospect. It is making me nuts even thinking about it.
I am now actively praying for my father's pre-emptive death, frankly, so that he can be spared either of these alternatives. Imagine how happy I am with myself about
that. It is unbearable.
I can't sleep.
Labels: death, family, health